Are there any communities for #Epilepsy like #ActuallyAutistic ?
I’m not looking for facts or statistics (yet), but lived experience.
That’s what’s been so valuable about ActuallyAutistic group (npub10v4…s27h) ; recognizing MY story in so many others and for the first time not feeling like an alien.
When I search “epilepsy”, I mostly find news about epilepsy, rather than the experiences of epileptics.