I had the appointment with my neurologist today. I didn’t like it.
I’ve been taking notes on the issues I’ve noticed, and I compiled them into a tidy list, thinking that I was PARTICIPATING in my recovery.
I started reading from the list, she stopped me at #4, dismissed my concerns, wouldn’t let me finish the list, wouldn’t look at the list herself… It really made me feel crummy. And I liked and trusted her. Now I feel like, “Don’t look to her for answers.”
She asked, “Why are you so stressed? Why do you have so much stress? You shouldn’t be so stressed!”
OMG have you seen reality?!?!
Have you seen MY reality?!?!?
And this is even worse: When I tried to talk about Helene, and how my recovery, rehabilitation and benefits have been delayed due to Helene, she started going on about how OTHER of her patients DIED, and I should feel LUCKY that I am alive.
That just doesn’t seem… healing? Nurturing? Am I supposed to feel ashamed?
She also told me I was “thinking about #epilepsy too much”!?!?!
I pushed back on that! “I was just diagnosed in September! Shouldn’t I be learning as much as I can about epilepsy?!?!?”
I don’t remember her response.
She did prescribe some new anxiety medication. She wants me tested for ADHD in the new year, and start cognitive & vestibular (?) therapy
I guess I feel so dumb because I’ve been telling everyone how great she is, how I trust her so much…. and now, I just feel sad and gross. I thought I was gonna be walking out of there with some real concrete answers.
Creative! Queer!! Autistic!!!
npub1j8…tzwng
2024-11-22 18:15:57 UTC
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wss://relay.momostr.pinkPublished at
2024-11-22 18:15:57 UTCEvent JSON
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