Kevin Davy on Nostr: No, she's definitely not doing a good job. It doesn't matter that this may be coming ...

No, she's definitely not doing a good job. It doesn't matter that this may be coming from a good place and a real intention to help you. You don't mess with someone's meds, or autonomy, not in a situation like this and especially someone struggling like you are. It's no wonder that your medical team are so concerned and willing to take action. Because all it really shows is that she really doesn't understand what's going on. Either the reality of the situation you're in, or the way you're going to have to come to terms with the long term nature of it.
There are ways that you will come to adapt to it, to manage it. An acceptance that this is a fact of your life going forward and none of that will happen overnight, or without a struggle. It's a process that all of us who have a long term chronic condition have to go through. Even someone like me, who was born with one, still have to go through it. We still have to learn our limitations, our own, unique, ways of being able to cope and make what we can out of life. It's definitely not the sort of thing that you can force someone through, or ever make them get better from, no matter what you try.