3/
“Many [with ME/CFS] experience medical gaslighting, misdiagnoses, and treatments that fail to account for the disease’s hallmark symptom: post-exertional malaise (PEM)—where even minor exertion can lead to debilitating symptoms and functional decline.”
#MECFS
MECFS group (npub1gxp…cjhq)
Tom Kindlon
npub1km…ayhzg
2025-03-08 22:58:28 UTC
in reply to nevent1q…avnq
Author Public Key
npub1km4u58fm95kyxmtuykwlgkz5jssejvmfu4hkadx8t75vn9pfwf9qvayhzgSeen on
wss://relay.momostr.pinkPublished at
2025-03-08 22:58:28 UTCEvent JSON
{
"id": "9e73fb41db7fd19242999fc0b09fa9081cc668a2f41b1a2d89b51587415dded4",
"pubkey": "b6ebca1d3b2d2c436d7c259df458549421993369e56f6eb4c75fa8c99429724a",
"created_at": 1741474708,
"kind": 1,
"tags": [
[
"p",
"b6ebca1d3b2d2c436d7c259df458549421993369e56f6eb4c75fa8c99429724a"
],
[
"proxy",
"https://disabled.social/@tomkindlon/114129286499596220",
"web"
],
[
"e",
"d15879bce159a489c6e3c558db9a94105679863317484a5825c0f70f94092077",
"",
"root",
"b6ebca1d3b2d2c436d7c259df458549421993369e56f6eb4c75fa8c99429724a"
],
[
"p",
"4183d5d62364453fb00c8a2ab81c91524ff4c36a9ec2a5445a6309b6ae940304"
],
[
"e",
"9d5fdbacea4c97b1e444fb366b9b638b53b42b7b3b1b456afc9e556c1834feae",
"",
"reply",
"b6ebca1d3b2d2c436d7c259df458549421993369e56f6eb4c75fa8c99429724a"
],
[
"t",
"mecfs"
],
[
"proxy",
"https://disabled.social/users/tomkindlon/statuses/114129286499596220",
"activitypub"
],
[
"L",
"pink.momostr"
],
[
"l",
"pink.momostr.activitypub:https://disabled.social/users/tomkindlon/statuses/114129286499596220",
"pink.momostr"
],
[
"-"
]
],
"content": "3/\n\n“Many [with ME/CFS] experience medical gaslighting, misdiagnoses, and treatments that fail to account for the disease’s hallmark symptom: post-exertional malaise (PEM)—where even minor exertion can lead to debilitating symptoms and functional decline.”\n\n#MECFS\nnostr:npub1gxpat43rv3znlvqv3g4ts8y32f8lfsm2nmp223z6vvymdt55qvzqa8cjhq",
"sig": "43c0b0321a7c38b14da2d60549101d7005cee9235f7e81e9a7f3095e59591586f579ae636d852e9e21385117ce50abd25d62d3b271e679bbbb8ef63392140e50"
}