Arend (they/them) on Nostr: Today, what I wish others understood about my chronic illness (which is something ...
Today, what I wish others understood about my chronic illness (which is something like long-COVID/fibromyalgia/MECFS) is this:
The naive hope that there is a miracle cure is often one that is steeped in ableism.
We would not need to place so much burden on the hope for miracle cures if we instead just created a society that simply accommodates disabled people.
I would have a much easier time being chronically ill if society weren't predisposed to sideline me for being ill.
Published at
2025-10-23 17:34:06 UTCEvent JSON
{
"id": "51560141b81b203dba8249949d6ce900a1cc381260b4cebdad5b15e2f14917c7",
"pubkey": "24c8ab620817f5a7eef3ac9ab6a2911b6e3cc8ec61aa7e81e3f189fd2b23245a",
"created_at": 1761240846,
"kind": 1,
"tags": [
[
"proxy",
"https://musicians.today/@arendleejessurun/115424680125434790",
"web"
],
[
"proxy",
"https://musicians.today/users/arendleejessurun/statuses/115424680125434790",
"activitypub"
],
[
"L",
"pink.momostr"
],
[
"l",
"pink.momostr.activitypub:https://musicians.today/users/arendleejessurun/statuses/115424680125434790",
"pink.momostr"
],
[
"-"
]
],
"content": "Today, what I wish others understood about my chronic illness (which is something like long-COVID/fibromyalgia/MECFS) is this:\n\nThe naive hope that there is a miracle cure is often one that is steeped in ableism.\n\nWe would not need to place so much burden on the hope for miracle cures if we instead just created a society that simply accommodates disabled people.\n\nI would have a much easier time being chronically ill if society weren't predisposed to sideline me for being ill.",
"sig": "6f90ff5913cec86892539f2bb0534145496c32c6b12cecdc09d0265ab848167a3cf83e04d5b38d43bcd2b424b030dd2d9712ec5950223713c22fb1ee8becae95"
}