6/
“ME exiles people from their family, friends, and hoped-for futures. For most, this banishment is for life because nine in ten will never recover, and also because we expend too little effort to end this wicked disease.
That’s the irony – it’s society’s lack of effort to understand this illness and its treatment; our societal inertia; our failure to accept patients’ symptoms that perpetuate their exile.”
#MEcfs #PwME
MECFS group (npub1gxp…cjhq)
Tom Kindlon
npub1km…ayhzg
2024-10-23 19:55:24 UTC
in reply to nevent1q…3942
Author Public Key
npub1km4u58fm95kyxmtuykwlgkz5jssejvmfu4hkadx8t75vn9pfwf9qvayhzgSeen on
wss://relay.momostr.pinkPublished at
2024-10-23 19:55:24 UTCEvent JSON
{
"id": "7e093385918008cb3f9123d388791525f6eaef854f32e13a40158b264ec75270",
"pubkey": "b6ebca1d3b2d2c436d7c259df458549421993369e56f6eb4c75fa8c99429724a",
"created_at": 1729713324,
"kind": 1,
"tags": [
[
"e",
"43fdff985f7e9e014967a2628d490f6036d0c04d4f460a39f3915b6a0405c138",
"",
"reply",
"b6ebca1d3b2d2c436d7c259df458549421993369e56f6eb4c75fa8c99429724a"
],
[
"p",
"b6ebca1d3b2d2c436d7c259df458549421993369e56f6eb4c75fa8c99429724a"
],
[
"proxy",
"https://disabled.social/@tomkindlon/113358492432924701",
"web"
],
[
"t",
"mecfs"
],
[
"p",
"4183d5d62364453fb00c8a2ab81c91524ff4c36a9ec2a5445a6309b6ae940304"
],
[
"e",
"e6eefbdffd956674a100aebeaa608beabc3e38bc041adc2959848b7d6814edbc",
"",
"root",
"b6ebca1d3b2d2c436d7c259df458549421993369e56f6eb4c75fa8c99429724a"
],
[
"t",
"pwme"
],
[
"proxy",
"https://disabled.social/users/tomkindlon/statuses/113358492432924701",
"activitypub"
],
[
"L",
"pink.momostr"
],
[
"l",
"pink.momostr.activitypub:https://disabled.social/users/tomkindlon/statuses/113358492432924701",
"pink.momostr"
],
[
"-"
]
],
"content": "6/\n“ME exiles people from their family, friends, and hoped-for futures. For most, this banishment is for life because nine in ten will never recover, and also because we expend too little effort to end this wicked disease.\n\nThat’s the irony – it’s society’s lack of effort to understand this illness and its treatment; our societal inertia; our failure to accept patients’ symptoms that perpetuate their exile.”\n\n#MEcfs #PwME \nnostr:npub1gxpat43rv3znlvqv3g4ts8y32f8lfsm2nmp223z6vvymdt55qvzqa8cjhq",
"sig": "411dd93a396634fcd2f8ef98e060ff7b891a5d486dc29a76068f1e5602a5a514828dd4bf103372380e8ebd9cd65e9e6de235ea53afd6a1c03398f13b7c73ba77"
}