(Fern:) You know how there are terms for “Deaf” and “hard of hearing”? I wish there was a widely accepted distinction like that for being housebound/bedbound. I’m hard of walking, I guess? I hope it’s not rude to make that comparison.
I do get up maybe 3-5 times a day for 3-5 minutes at a time (bathroom, food, etc.), so when I say “I’m bedbound” that’s… not accurate, but I don’t know of a better way to say it. I sometimes say I’m “mostly bedbound”.
I can’t even say “housebound” because two weeks ago my caregiver did help me sit outside for a bit, and then pushed me in my wheelchair on a “walk”. Like, I *do* leave my apartment on occasion. It’s just, it’s quite rare.
I think maybe the problem is that we don’t talk about house/bedbound people and our realities very much. It’s “depressing” or maybe makes abled people think too much about the possibilities of their own future? Becoming disabled doesn’t HAVE to be so terrible, though. We could fix that! 🥺
#housebound #bedbound #MEcfs
Rainbow (plural system) 🏳️⚧️
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2024-08-25 08:57:49 UTC
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wss://relay.momostr.pinkPublished at
2024-08-25 08:57:49 UTCEvent JSON
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