Nostr notes by Ahimsa

Had a very thought provoking conversation, here's a snippet ...

2026-04-02T16:29:30Z

In reply to nevent1q…2xfg
_________________________

Had a very thought provoking conversation, here's a snippet

"Live updates: Oregonians rally statewide under ‘No ...

2026-03-28T19:54:17Z

"Live updates: Oregonians rally statewide under ‘No Kings’ banner amid national protests"

#GiftLink = https://www.oregonlive.com/portland/2026/03/oregonians-rally-statewide-under-no-kings-banner-amid-national-protests.html?gift=787e9f79-d34b-4fea-ac2e-4f1cc41c3050

"Thousands of Oregonians are participating in dozens of “No Kings” protests across the state Saturday as similar demonstrations unfold nationally for the third time in the past year."

#USPol #Oregon #Portland #PDX #NoKings #Protest #Resist

Timeline cleanse: Rescued bobcats released into the wild! (story ...

2026-03-28T18:58:01Z

Timeline cleanse: Rescued bobcats released into the wild!
(story has lots of photos)

Does this count as a #Caturday post? 🤔

"Orphaned bobcat kittens rescued in Oregon return to the wild"

#GiftLink = https://www.oregonlive.com/environment/2026/03/orphaned-bobcat-kittens-return-to-wild-after-oregon-rescue.html?gift=54489bf9-c15f-49e7-a75b-9504f7d4270d

"Today, the young bobcats are back in the wild, beginning a new chapter of independence and fending for themselves."

#Oregon #Wildlife #Bobcat #Cute

These young students have more courage than most politicians! ...

2026-03-18T00:19:15Z

These young students have more courage than most politicians!

"Oregon middle schoolers stage walkout to protest ICE: ‘This generation is reaching up’"

gift link =https://www.oregonlive.com/clackamascounty/2026/03/oregon-middle-schoolers-stage-walkout-to-protest-ice-this-generation-is-reaching-up.html?gift=3c42217b-2d06-44c8-a367-81149d639bb5

"More than 100 students walked out of Gardiner Middle School in Oregon City…"

"The walkout was organized by eighth-grade students, who started planning among themselves last Wednesday, students said."

#USPol #Oregon #OregonCity #ICE #Immigration #MeltICE #AbolishICE #MiddleSchool #Protest #Resist #GiftLink

"Oregon’s senior US senator, secretary of state warn of fed ...

2026-03-15T04:58:31Z

"Oregon’s senior US senator, secretary of state warn of fed voter suppression under SAVE Act"

https://www.opb.org/article/2026/03/14/read-wyden-warn-voter-suppression/

"Sen. Ron Wyden and Secretary of State Tobias Read said they would defend mail-in voting and the state’s election integrity."

"Wyden vowed to fight the bill in the Senate, where it’s expected to get a vote next week, and he and Read vowed to protect Oregon’s decades-old vote-by-mail system."

#USPol #ORpol #Oregon #Voting #Elections #VoteByMail #SaveAct #VoterSuppression

"you are the most beautiful birb!" 🤭

2026-03-11T19:52:05Z

In reply to nevent1q…90nu
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"you are the most beautiful birb!" 🤭

The Museum of HP Calculators website has a classifieds section ...

2026-02-26T21:18:45Z

In reply to nevent1q…xl7m
_________________________

The Museum of HP Calculators website has a classifieds section (my friend runs this website)

https://www.hpmuseum.org/

I'm not sure whether you'll get a better price there or on ebay (I know nothing about vintage calculators) but thought I'd mention it in case it's helpful! Good luck!

Edit, in case it was not clear: This is an alternative to ebay, in case you don't get the price you want. You can't post ebay links on the forum.

Good to know! Thanks for passing this on! ❤️ Here's the ...

2026-02-22T22:57:02Z

In reply to nevent1q…la0v
_________________________

Good to know! Thanks for passing this on! ❤️

Here's the link and phone number printed at the bottom of the flyer (Oregon DOJ):

https://www.doj.state.or.us/oregon-department-of-justice/civil-rights/sanctuary-promise/

1-844-924-STAY (1-844-924-7829)

#USPol #Oregon #ICE #AbolishICE #ICEOut #Resist

Excellent caption! 😁 My idea: Short bird: Bird City? Does that ...

2026-02-22T16:16:43Z

In reply to nevent1q…g69m
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Excellent caption! 😁 My idea:

Short bird: Bird City? Does that mean more tourists?

Tall bird: Yes! So stand up straight and show them your good side - like this!

"Oregon has the first ‘Bird City’ on the Pacific Coast. ...

2026-02-22T02:34:11Z

"Oregon has the first ‘Bird City’ on the Pacific Coast. Here’s what that means"

gift link = https://www.oregonlive.com/environment/2026/02/oregon-has-the-first-bird-city-on-the-pacific-coast-heres-what-that-means.html?gift=4ea265fe-7344-4561-b2b7-005cfe23252d

"Yachats is the first community on the Pacific Coast to be named a Bird City by the Bird City Network, which has about 300 participating communities in North and South America, according to founders with the nonprofit American Bird Conservancy and Environment for the Americas.

Education is part of the Bird City program"

#Oregon #Birds #Birding #Wildlife #GiftLink

No surprise, but it's good to have some data to back it up ...

2026-02-19T22:33:26Z

No surprise, but it's good to have some data to back it up

"A few weeks of X’s algorithm can make you more right-wing – and it doesn’t wear off quickly"

https://theconversation.com/a-few-weeks-of-xs-algorithm-can-make-you-more-right-wing-and-it-doesnt-wear-off-quickly-276153

"A new study published today in Nature has found that X’s algorithm ... shifts users’ political opinions in a more conservative direction."

#SocialMedia #Politics #X #Twitter

"Indigenous teen Keeya Wiki kayaked the entire Klamath River. ...

2026-02-18T02:15:29Z

"Indigenous teen Keeya Wiki kayaked the entire Klamath River. It’s just the beginning"

gift link = https://www.oregonlive.com/native-american-news/2026/02/indigenous-teen-keeya-wiki-kayaked-the-entire-klamath-river-its-just-the-beginning.html?gift=7bb68a3d-aaea-4970-9170-7d85368602c2

"Ashland High School student Keeya Wiki kayaked 310 miles on the Klamath River last summer ...

The historic first descent of the newly undammed Klamath River by Indigenous teens captured the world’s attention and launched Keeya into the spotlight."

#Oregon #California #KlamathRiver #Outdoors #Kayaking #Indigenous

"A photographer’s quest to document native bees includes an ...

2026-02-16T01:00:54Z

"A photographer’s quest to document native bees includes an annual search along the California-Oregon border"
https://www.opb.org/article/2026/02/15/california-photographer-quest-document-native-bees-oregon-border/

"Hickman is on a quest to document hundreds of species of native bees, which are under threat by climate change and habitat loss, some of it caused by the more recognizable and agriculturally valued honey bee — an invasive species. Of the roughly 4,000 types of bees native to North America [she's] photographed over 300"

#California #Oregon #Nature #Bees #Science

Portland frog protestor Seth Todd has been arrested: ...

2026-01-11T01:18:03Z

Portland frog protestor Seth Todd has been arrested:

https://www.wweek.com/news/city/2026/01/09/portland-frog-seth-todd-arrested-at-south-waterfront-protest/

Asked for a comment about why they were at ICE last night, Todd responded: “It’s not up to the oppressors and their lap dog enforcers to dictate what is an acceptable form of resistance and protest.”

#USPol #Oregon #Portland #PDX #NoICE #ICEout #Protest

RE: https://mastodon.social/@Sarahp/115691737659897911 Kill it ...

2025-12-09T21:35:46Z

RE: https://mastodon.social/@Sarahp/115691737659897911

Kill it with fire 🔥
nostr:note1sd5pq4jt3jkwxu32ghxe7y88j0sz4j0uqlvylehrhvshm3savaxsn5g66t

Lovely photo ❤️

2025-12-08T18:40:14Z

In reply to nevent1q…lssh
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Lovely photo ❤️

"Oregon teenager’s ICE detention sparks high school ...

2025-11-25T01:31:38Z

"Oregon teenager’s ICE detention sparks high school walkout"

gift link = https://www.oregonlive.com/portland/2025/11/oregon-teenagers-ice-detention-sparks-high-school-walkout.html?gift=10daf0cf-0529-4811-9816-5fc772bd2eb1

"About 300 students walked out of school 'in response to the ICE activity in our community last week,' McMinnville School District Interim Superintendent Kourtney Ferrua said in a statement."

"Four U.S. citizens were detained in Oregon last week, advocacy group Oregon for All said, including two women who were filming ICE activities"

#USPol #Oregon #Immigration #ICE #Protest #Resist #GiftLink

It looks gorgeous, like something out of a cooking magazine!

2025-11-24T18:43:55Z

In reply to nevent1q…pxmj
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It looks gorgeous, like something out of a cooking magazine!

I don't even like autocorrect. Let me just do a spell check ...

2025-11-19T00:02:40Z

In reply to nevent1q…lfu9
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I don't even like autocorrect. Let me just do a spell check after I'm finished.

So I can't even imagine using a software program that would interrupt my train of thought! Especially since my train of thought is easily broken (cognitive issues due to my illness)

I'm not even a writer and I agree 100% with this message! ...

2025-11-18T23:41:38Z

In reply to nevent1q…j6az
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I'm not even a writer and I agree 100% with this message!

Someone needs to help her turn off the damn AI option! (that's still possible, right? I don't use MS Word so I don't know ...)

"It’s Election Day in Oregon and Southwest Washington" ...

2025-11-04T18:58:20Z

"It’s Election Day in Oregon and Southwest Washington"

https://www.opb.org/article/2025/11/04/oregon-washington-election-day-voting-portland-multnomah-ballot/

This story has general info about deadlines and locations for returning completed ballots (both states automatically mail ballots to registered voters)

Personal note from me: If you live in Washington County, Oregon, please vote yes on the Libray levy! (Measure 34-345)

#USPol #Oregon #Washington #WashCo #GOTV #Libraries #Vote #VoteByMail #VoteAtHome

"Portland coffee shop raises over $86,000 to feed people ...

2025-10-29T03:54:14Z

"Portland coffee shop raises over $86,000 to feed people losing SNAP benefits"

gift link = https://www.oregonlive.com/food/2025/10/portland-coffee-shop-raises-over-72000-to-feed-people-losing-snap-benefits.html?gift=913a98a4-75d6-436d-b026-62d54ff9879e

"Heretic Coffee, 5120 S.E. 28th Ave., is a volunteer-run, nonprofit coffee shop that trains people to become baristas and coffee roasters.

The coffee shop has been soliciting donations for less than a week to pay for breakfast for people losing Supplemental Nutrition Assistance Program, or SNAP benefits …"

#Oregon #Portland #PDX #FoodAssistance #SNAP #SNAPCuts #GiftLink

I do not follow any sports-ball teams, so no comment on the ...

2025-10-05T20:53:30Z

In reply to nevent1q…scjw
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I do not follow any sports-ball teams, so no comment on the Lions, but what a cutie pie! 🐶❤️

From Indivisible Oregon, some photos from a protest on the ...

2025-09-24T17:21:37Z

From Indivisible Oregon, some photos from a protest on the Hawthorne Bridge in Portland, Oregon.

#USPol #Portland #PDX #Protest #Resist #Fascism #Indivisible #SignsOfFascism

"‘These vaccines work’: Oregon’s health officer on West ...

2025-09-19T17:41:44Z

"‘These vaccines work’: Oregon’s health officer on West Coast COVID-19 vaccine guidelines"

https://www.opb.org/article/2025/09/18/west-coast-covid-19-vaccine-guidelines-oregon-health-officer/

"The governors in Oregon, Washington, California and Hawaii have formed an alliance to counter the Centers for Disease Control and Prevention.

They say CDC decisions are "being politicized under the leadership of U.S. Health and Human Services Secretary Robert F. Kennedy Jr., a longtime anti-vaccine activist."

#USPol #Oregon #COVID #Vaccines #PublicHealth #CDC #CovidIsNotOver

Hope it all went well and you got your shot! I got my COVID ...

2025-09-16T00:45:02Z

In reply to nevent1q…3e4t
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Hope it all went well and you got your shot!

I got my COVID booster today, too! 😁

Just found this: "Welcome to the New Era of Covid Vaccine ...

2025-09-15T23:50:32Z

In reply to nevent1q…220l
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Just found this:

"Welcome to the New Era of Covid Vaccine Tourism"

https://www.motherjones.com/politics/2025/09/covid-vaccine-state-tourism-acip-rfk/

"Trump and RFK Jr.’s anti-vax crackdown is driving Americans across state lines—and making some pay out of pocket"

"… in an increasingly anti-vaccine public health regime, Americans are subject to a patchwork of state rules on who qualifies for the Covid vaccine and under what circumstances"

8/n

#USPol #Oregon #COVID #CovidIsNotOver #Vaccines #PublicHealth

I also found this document which is dated Sept. 10: "COVID-19 ...

2025-09-15T21:58:49Z

In reply to nevent1q…jsar
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I also found this document which is dated Sept. 10:

"COVID-19 Vaccination Administration and Prescription Standards"

https://www.oregon.gov/osbn/Documents/JointStatementonVaccineAdministration.pdf

It includes this line:

"Lack of additional federal guidance does not, however, prohibit providers from providing vaccine prescriptions and administering the COVID-19 vaccine."

7/n

#Oregon #COVID #Vaccines #CovidIsNotOver #PublicHealth

Here's some official info from the Oregon Health Authority, ...

2025-09-15T21:53:59Z

In reply to nevent1q…ypg4
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Here's some official info from the Oregon Health Authority, just in case it's helpful for anyone out there.

"Frequently Asked Questions:
COVID Vaccine Access" (PDF file)

https://sharedsystems.dhsoha.state.or.us/DHSForms/Served/le-1130100.pdf

6/n

#Oregon #COVID #Vaccines #CovidIsNotOver #PublicHealth

Those who want to get a COVID vaccine this fall should try to get ...

2025-09-15T21:35:01Z

In reply to nevent1q…0386
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Those who want to get a COVID vaccine this fall should try to get it sooner vs. later.

The next ACIP meeting on Thursday-Friday (Sept 18-19) might tighten restrictions on the COVID vaccine even more.

If you're in Oregon and you're able to go to a pharmacy in Vancouver, Washington, then that might be a better option.

Just be prepared that some pharmacies might ask questions even if you are over 65 *and* have a doctor's prescription.

5/n

#Oregon #COVID #Vaccines #CovidIsNotOver #PublicHealth

My husband does have some other high risk factors so he was able ...

2025-09-15T21:31:17Z

In reply to nevent1q…90yp
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My husband does have some other high risk factors so he was able to get the COVID vaccine (plus the flu vaccine). But it was really an eye opener.

Our doctor's office is small. They don't have the facilities to store vaccine doses. For years the trend has been toward getting vaccines at pharmacies.

This is a huge setback. A lot of Oregonians who are over 65 are going to be stuck if even having an Rx is not enough!

4/n

#Oregon #COVID #Vaccines #CovidIsNotOver #PublicHealth

Then it was my husband's turn. He's over 65. He had his ...

2025-09-15T21:30:25Z

In reply to nevent1q…zrcd
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Then it was my husband's turn. He's over 65. He had his own Rx from our doctor. And yet the pharmacist said that he had to be in one of the high risk groups in order to get the COVID booster. The Rx was not enough!

I've been reading the news, plus info from the Oregon Health Authority, and this is the first time I've heard that being over 65 plus a doctor's prescription is not enough to get a COVID vaccine in the pharmacy.

3/n

#Oregon #COVID #Vaccines #CovidIsNotOver #PublicHealth

Anyway, it was not a big problem. Based on what I'd already ...

2025-09-15T21:29:45Z

In reply to nevent1q…h9q7
_________________________

Anyway, it was not a big problem. Based on what I'd already read I knew that an Rx would not be enough even though it does not make sense.

I have ME/CFS so I fall under the category of limited physical activity. I'm lying down resting most of the time. (ME/CFS sucks, but that's a different story)

2/n

#Oregon #COVID #Vaccines #CovidIsNotOver #PublicHealth

I got my COVID booster shot today at a local pharmacy here in ...

2025-09-15T21:28:55Z

I got my COVID booster shot today at a local pharmacy here in Oregon. I knew I'd need a prescription (Rx) from my doctor.

Now you'd think having an Rx would be enough, right? After all, my doctor knows me and my health issues. The pharmacist doesn't know me.

But no! I'm under 65 so the pharmacist had to verify that I was in a high risk category. I already had that discussion with my doctor, right? Hence the Rx? But, okay ... 🙄

1/n

#Oregon #COVID #Vaccines #CovidIsNotOver #PublicHealth

Remember that white house executive order against DEIA, ...

2025-09-12T22:21:01Z

Remember that white house executive order against DEIA, “diversity, equity, inclusion, and accessibility”?

They went out of their way to add the A for accessibility. So this is very sad but not surprising.

"Trump administration cuts funding to Oregon disability programs"

https://www.opb.org/article/2025/09/11/trump-cuts-funding-oregon-disability-programs/

"Organizations across Oregon received notice from the U.S. Department of Education that they’d lose hundreds of thousands of dollars"

#Oregon #Disability #Accessibility #DisabilityJustice #Education

Sending you some love, hope you can get some rest ❤️

2025-09-12T17:12:50Z

In reply to nevent1q…cccy
_________________________

Sending you some love, hope you can get some rest ❤️

I just saw this and thought it might help. The Oregon Health ...

2025-09-12T17:03:17Z

In reply to nevent1q…hjkt
_________________________

I just saw this and thought it might help. The Oregon Health Authority suggested going to https://www.211info.org/ (or calling 211) if you don't have a regular doctor.

source = https://sharedsystems.dhsoha.state.or.us/DHSForms/Served/le-1130100.pdf

I'm so sorry! My state (Oregon) also requires a prescription ...

2025-09-12T16:48:58Z

In reply to nevent1q…6na4
_________________________

I'm so sorry! My state (Oregon) also requires a prescription now

My husband and I have a PCP (primary care physician) so we got an Rx. I hope you can get an Rx somehow! Crossing my fingers for you!

If you end up driving to a state that doesn't need an Rx then make sure your insurance will still cover the cost in that location (insurance coverage can be very confusing) if you don't want to pay for the shot out of pocket.

Ignore him and listen to other doctors? ...

2025-09-03T02:51:44Z

In reply to nevent1q…n2zd
_________________________

Ignore him and listen to other doctors?

https://www.pbs.org/newshour/show/epidemiologist-breaks-down-new-restrictions-on-covid-shots

Dr. Katelyn Jetelina, : "I'm sure people are really sick of the Swiss cheese model, but there's also other steps to take not to get sick, like wearing a mask in crowded indoor spaces, testing before you visit grandparents in the nursing home."

#COVID #COVID19 #CovidIsNotOver #WearAMask

"… one of the best ways to avoid Long COVID is to avoid ...

2025-09-03T02:39:42Z

In reply to nevent1q…t5kc
_________________________

"… one of the best ways to avoid Long COVID is to avoid getting infected with COVID. Kennedy has spoken about wanting to address root causes, and the root cause of post-COVID complications is infection with COVID, making prevention efforts a key way to prevent new health problems.

Unfortunately, Kennedy has approached COVID prevention the same way he has approached measles prevention. He has gone after COVID vaccines…"

#Covid #CovidIsNotOver
#LongCovid #MEcfs #USPol #RFKJR

"Secretary Kennedy Doesn’t Care About Long COVID ...

2025-09-03T02:35:16Z

"Secretary Kennedy Doesn’t Care About Long COVID Patients"

https://cepr.net/publications/secretary-kennedy-doesnt-care-about-long-covid-patients/

"Kennedy has dismantled not only federal COVID prevention programs but also much of the research infrastructure devoted to understanding and treating Long COVID"

longcovid group (npub10ng…m7ge) MECFS group (npub1gxp…cjhq)

#Covid #Covid19 #CovidIsNotOver #LongCovid #MEcfs #CDC #NIH #USPol

"A Democrat and a Republican will team up to try to ban ...

2025-09-02T00:51:02Z

"A Democrat and a Republican will team up to try to ban masked law enforcement in Oregon"

gift link = https://www.oregonlive.com/politics/2025/09/a-democrat-and-a-republican-will-team-up-to-try-to-ban-masked-law-enforcement-in-oregon.html?gift=6def7833-fabb-485c-9566-c3b269e6a4df

"Their proposal would prohibit law enforcement officers from wearing face coverings and would require them to wear 'official uniforms' with badge numbers and names. It would not apply to SWAT teams or undercover police officers as they currently operate."

#USPol #Oregon #Police #ICE #Immigration #GiftLink

The worst offense? No chips! 😱 If you hand me a bag of chips ...

2025-08-21T00:58:17Z

In reply to nevent1q…x0gq
_________________________

The worst offense? No chips! 😱

If you hand me a bag of chips and there are no chips inside then no amount of money is going to make up for that! 😉

But seriously, WTF?!

"Oregon won’t change sanctuary law, Kotek tells Trump ...

2025-08-19T21:03:47Z

"Oregon won’t change sanctuary law, Kotek tells Trump administration"

https://www.opb.org/article/2025/08/19/sanctuary-state-law-oregon-bondi/

"Gov Tina Kotek told federal officials Tuesday that Oregon will not abandon its sanctuary laws in the face of threats by the Trump administration …"

"Oregon’s sanctuary law, the first of its kind in the nation, prevents public officials in the state from assisting federal authorities on immigration …"

#USPol #Oregon #Immigration #Sanctuary #Trump #Resist

From the Disability Visibility Project: "Immigrant Rights Are ...

2025-07-16T00:22:56Z

From the Disability Visibility Project:

"Immigrant Rights Are Disability Rights"

https://disabilityvisibilityproject.com/2025/07/13/immigrant-rights-are-disability-rights/

"… a true commitment to justice for disabled people must recognize that many undocumented immigrants are themselves disabled and deserving of basic rights, not total erasure from the disability rights discourse."

#USPol #Disability #DisabilityRights #Ableism #Immigration #HumanRights

"With Long COVID, the Hidden Risks of ME/CFS Are Real" ...

2025-07-15T17:18:25Z

"With Long COVID, the Hidden Risks of ME/CFS Are Real"

https://www.healthcentral.com/condition/coronavirus/long-covid-may-trigger-me-cfs

"Researchers found that people who had COVID were nearly five times more likely to develop ME/CFS than those who never had the virus."

MECFS group (npub1gxp…cjhq) longcovid group (npub10ng…m7ge)

#MEcfs #PwME #LongCovid #PwLC #COVID #CovidIsNotOver #ChronicIllness

Sen. Padilla's speech on being forced to the ground & ...

2025-06-18T22:22:09Z

Sen. Padilla's speech on being forced to the ground & handcuffed after asking a question:

https://www.youtube.com/watch?v=G-mKheWHHDw

"… we've seen masked federal agentsn in tactical gear, ordered into our communities. We've seen a disturbing pattern of increasingly extreme and cruel immigration enforcement operations targeting nonviolent people, at places of worship, at schools,
in courthouses, all to meet an arbitrary quota."

(automated captions, some errors)

#USPol #Padilla #Immigration #Democracy #Resist

They also changed their rules to remove national origin. I'm ...

2025-06-16T19:30:19Z

In reply to nevent1q…l7qv
_________________________

They also changed their rules to remove national origin.

I'm not sure why that part didn't make the headline, especially with all the other anti-immigrant actions going on in the US.

"Climate activist Greta Thunberg joins aid ship sailing to ...

2025-06-01T21:55:18Z

"Climate activist Greta Thunberg joins aid ship sailing to Gaza aimed at breaking Israel’s blockade"

https://apnews.com/article/greta-thunberg-gaza-freedom-flotilla-ship-aid-51729fb2b549e55547907a3b1623b515

"Climate campaigner Greta Thunberg and other 11 activists set sail on Sunday afternoon for Gaza on a ship aimed at 'breaking Israel’s siege' ...

[they] will try to reach the shores of the Gaza Strip in an effort to bring in some aid and raise international awareness over the ongoing humanitarian crisis"

#Politics #Climate #Environment #Gaza #Thunberg #FreedomFlotilla

If you learn nothing else from my thread today, please remember ...

2025-05-12T17:24:42Z

In reply to nevent1q…xryr
_________________________

If you learn nothing else from my thread today, please remember this:

Exercise is NOT recommended for people with ME/CFS!

Exercise is not good for anyone who has post-exertional malaise (PEM), sometimes called post-exertional symptom exacerbation (PESE), and that includes a significant portion of people with Long Covid.

This video has more info:

https://www.youtube.com/watch?v=wxSwYUennBA

3/n

MECFS group (npub1gxp…cjhq) longcovid group (npub10ng…m7ge)

#MEcfs #PwME #PEM #PESE #LongCovid #MillionsMissing #MEAwareness #WorldMEDay

My story, in brief: I caught an unknown virus in Dec 1989. I ...

2025-05-12T17:20:30Z

In reply to nevent1q…68f4
_________________________

My story, in brief:

I caught an unknown virus in Dec 1989. I thought I'd recovered but then started getting new symptoms in Jan 1990. In March I went on medical leave.

Over the next 5 years I went to dozens of doctors but got no diagnosis until 1995. I tried to keep working but finally got too sick to work in 2000.

Pushing myself all those years led to a permanent worsening of my condition.

Not a good idea! 😔

2/n

MECFS group (npub1gxp…cjhq) longcovid group (npub10ng…m7ge)

#MEcfs #PwME #MillionsMissing #MEAwareness #WorldMEDay

💙 It's May 12th, International ME/CFS Awareness Day 💙 ...

2025-05-12T17:05:00Z

💙 It's May 12th, International ME/CFS Awareness Day 💙

My ME/CFS onset was in Jan 1990

🚨 Many recent ME/CFS cases have been triggered by COVID 🚨

In this thread I plan to post about 3 main things:

1. My ME/CFS story (briefly)

2. Helpful resources for patients and clinicians

3. Advocacy options for patients & allies (friends/family) - mostly US based

1/n

MECFS group (npub1gxp…cjhq) longcovid group (npub10ng…m7ge)

#MEcfs #LongCovid #PostCovid #Disability #DisabilitySOS #CovidIsNotOver #MillionsMissing #MEAwareness #WorldMEDay

"Vermont Judge releases Columbia University student Mohsen ...

2025-04-30T22:21:54Z

"Vermont Judge releases Columbia University student Mohsen Mahdawi"

(audio only, transcript to come)

https://www.npr.org/2025/04/30/nx-s1-5382366/vermont-judge-releases-columbia-university-student-mohsen-mahdawi

"Columbia University student Mohsen Mahdawi — detained by authorities at his naturalization interview — is free for now. He had been in prison for two weeks after his arrest earlier in April."

#USPol #Immigration #DueProcess #FreeSpeech #Mahdawi #Resist

Good one! Sadly, I've been going through that since 2000 (on ...

2025-04-23T23:22:31Z

In reply to nevent1q…q4zu
_________________________

Good one!

Sadly, I've been going through that since 2000 (on social security disability)

Edit: I'll add that getting ERISA disability is so much harder. Nothing radicalizes you like being surveilled. They found nothing new by following me, it just reinforced everything I had already reported, but it was so creepy!

Thanks for posting that! Quote from the article: "Some states ...

2025-04-23T22:05:33Z

In reply to nevent1q…8564
_________________________

Thanks for posting that!

Quote from the article:

"Some states are considering requiring people to work, go to school or volunteer in order to receive Medicaid benefits, a condition that would trim the rolls and save money."

Putting aside for a moment the fact that these kind of work/school requirements add an expensive layer of bureaucracy, what about all the folks on Medicaid who cannot work due to serious chronic illness or some other kind of disability?

"‘The SAVE Act isn’t about preventing fraud.’ Oregon ...

2025-04-12T01:18:21Z

"‘The SAVE Act isn’t about preventing fraud.’ Oregon representative gives fiery speech as House approves changes to voter registration"

https://www.oregonlive.com/politics/2025/04/the-save-act-isnt-about-preventing-fraud-oregon-representative-gives-fiery-speech-as-house-approves-changes-to-voter-registration.html

“The SAVE Act isn’t about preventing fraud, it’s about preventing participation in our elections" - Rep. Maxine Dexter

#USPol #Oregon #Elections #Voting #SaveAct #VoterSuppression #Resist

"For Some Disabled Protestors, 'Hands Off' Went ...

2025-04-06T00:41:57Z

"For Some Disabled Protestors, 'Hands Off' Went Virtual"

https://www.motherjones.com/politics/2025/04/hands-off-virtual-zooms-disability-covid/

“We know we have to teach everyone how to include us"

#USPol #HandsOff #Disability #Accessibility #LongCovid #MEcfs #ChronicIllness

I just found another virtual event which is organized by folks ...

2025-04-04T16:56:26Z

In reply to nevent1q…vn8l
_________________________

I just found another virtual event which is organized by folks with Long Covid

"Hands Off! COVID Long-Haulers Fights Back"

Saturday, April 5
1 – 2:30 pm Central Time
Virtual event
Join from anywhere

https://www.mobilize.us/handsoff/event/771943/

#USPol #HandsOff #Protest #Resist #Virtual #LongCovid #ChronicIllness #Accessible

🚨 The Hands Off! protests are tomorrow, Saturday, April 5 🚨 ...

2025-04-04T16:53:14Z

🚨 The Hands Off! protests are tomorrow, Saturday, April 5 🚨

Find one near you -

https://www.mobilize.us/handsoff/

Can't attend in person? There's a virtual event:

"Hands Off! Disabled Community Fights Back"

2 - 4 PM Pacific Time
Virtual Event
Join from anywhere!

https://www.mobilize.us/handsoff/event/770700/

#USpol #HandsOff #Protest #Resist #Virtual #Disabled #Disability #Accessibility

Re-posting with content warning: As always in #uspol, what’s ...

2025-03-26T17:33:21Z

Re-posting with content warning:

As always in #uspol, what’s controversial here is not that an American bomb leveled an entire apartment building in #Yemen killing 53 people (both Republicans and Democrats believe such operations are permissible), only that the plans to do so were discussed on an unsecured chat #signal #signalgate

source = https://spore.social/@abshlimon/114229476401590873

Senator Wyden's Town Hall has now started. Here's the ...

2025-03-05T02:06:14Z

In reply to nevent1q…8kc8
_________________________

Senator Wyden's Town Hall has now started. Here's the YouTube link for

https://www.youtube.com/watch?v=kcVPzXFq0WQ

#USPol #StateOfTheUnion #Resist #Oregon #TownHall

I know most folks who follow me won't be watching the ...

2025-03-05T00:31:22Z

I know most folks who follow me won't be watching the president's speech tonight.

But for those who want to stay politically engaged tonight here are two options:

1. Sen. Wyden of Oregon is holding a virtual Town Hall

* new link! *
https://www.youtube.com/watch?v=kcVPzXFq0WQ

2. "The State of Our Union" on Roland Martin's YouTube channel:

https://www.youtube.com/watch?v=-WlcDbwwjwI

Thanks to Paul E. (npub1p8w…mn06) for item 2, here's a link to the original post:

https://beige.party/@paulboeck/114104589421979745

#USPol #StateOfTheUnion #Resist #Trump

Beautiful! ✨

2025-02-10T18:11:12Z

In reply to nevent1q…9uv7
_________________________

Beautiful! ✨

Thanks! ❤️ The part about how media outlets want you to feel ...

2025-02-06T22:09:39Z

In reply to nevent1q…vezf
_________________________

Thanks! ❤️

The part about how media outlets want you to feel hopeless and helpless reminds me of a recent podcast:

"Can Hopeful Skepticism Replace Harmful Cynicism?"

https://www.scientificamerican.com/podcast/episode/the-science-of-cynicism-and-the-transformative-psychological-power-of-hope/

"cynicism is a tool of the status quo"

Thanks! Minor infection, I'll be better after I start the ...

2024-12-31T01:43:45Z

In reply to nevent1q…7dqe
_________________________

Thanks! Minor infection, I'll be better after I start the antibiotics

Whenever I'm feeling crappy my boosts on here changes to all ...

2024-12-31T01:40:09Z

Whenever I'm feeling crappy my boosts on here changes to all animals, mostly cats 😂

Headline: "Patients are frustrated that there isn't a ...

2024-12-23T19:23:33Z

Headline:

"Patients are frustrated that there isn't a reliable treatment yet for long COVID"

/begin snark

Wow, that *must* be frustrating! You know what else is frustrating? Having ME/CFS since 1990 without a reliable treatment!

/end snark

I do support more research on Long Covid treatments!

But we also need to research ME/CFS, POTS, etc. Folks who knew about ME/CFS predicted the pandemic would increase chronic illness cases.

See #MEAction post:
https://www.meaction.net/stoprestpace/

#LongCovid #MEcfs

That's so cute! 😁

2024-12-21T19:07:35Z

In reply to nevent1q…6e4v
_________________________

That's so cute! 😁

"Oregon AG Rolls Out New Sanctuary Promise Community Toolkit ...

2024-12-20T15:34:02Z

"Oregon AG Rolls Out New Sanctuary Promise Community Toolkit as a Resource for all Oregonians to Understand Sanctuary Laws and Access Resources"

https://www.doj.state.or.us/media-home/news-media-releases/oregon-ag-rolls-out-new-sanctuary-promise-community-toolkit-as-a-resource-for-all-oregonians-to-understand-sanctuary-laws-and-access-resources/

"New websites offer information and resources for those seeking to understand Oregon’s sanctuary laws and immigration rights"

#USPol #Oregon #Sanctuary #Immigration #Deportations #CivilRights

That matches my experience! (no, not here in Oregon - while ...

2024-12-16T21:26:47Z

In reply to nevent1q…dwk5
_________________________

That matches my experience! (no, not here in Oregon - while growing up in South Carolina)

That pun was a definite stretch because who says tubey?! Folks ...

2024-12-09T21:39:53Z

In reply to nevent1q…ahdf
_________________________

That pun was a definite stretch because who says tubey?! Folks would probably say tube-like.

It was just a silly thought that came into my head!

PS. I should have added 😉 It's just a silly joke 😁

2024-12-09T21:35:44Z

In reply to nevent1q…m35e
_________________________

PS. I should have added 😉
It's just a silly joke 😁

I'm trying to decide whether to make mac and cheese using ...

2024-12-09T21:19:19Z

I'm trying to decide whether to make mac and cheese using shells or elbows.

Tubey, or not tubey?
That is the question

One good thing about living with a chronic illness for 30+ years ...

2024-12-08T18:16:30Z

One good thing about living with a chronic illness for 30+ years (especially an illness like ME/CFS, stigmatized and belittled by the general public and even some researchers) is that I've had a lot of practice fighting against despair and hopelessness.

So many reasons to feel despair, but I keep trying to do what little I can (very little, I'm mostly homebound) to change things for the better.

My impact may be small but it's better than doing nothing!

#Hope #Activism #Advocacy #DoSomething

So many infuriating stories out there for how women have been ...

2024-12-06T18:03:04Z

In reply to nevent1q…r63j
_________________________

So many infuriating stories out there for how women have been treated by doctors! 😡

And the story I told earlier was about a woman doctor, so it's the culture of medicine, not just the individuals...

The lesson I learned from that visit was to never show any ...

2024-12-06T17:15:52Z

In reply to nevent1q…jklm
_________________________

The lesson I learned from that visit was to never show any emotion to doctors when describing my medical history or symptoms. Well, at least never show emotion to new doctors. Sometimes it's okay after having known them for several years.

That's probably the wrong lesson to learn but I've built up a lot of walls in order to get through doctor appointments.

PS. Can you imagine a doctor asking a male patient whether their symptoms are due to regret over their vasectomy? 🙃

My worst doc story: During an appt (a new doc, never seen her ...

2024-12-06T17:13:32Z

In reply to nevent1q…z5f5
_________________________

My worst doc story:

During an appt (a new doc, never seen her before) I listed my symptoms yet again. Then I started tearing up over how bad my symptoms were getting.

Her response?

"I see you had a tubal ligation 6 months ago. Do you think your symptoms could be because you regret that decision?"

ARGH! I managed not to scream at her in anger, just gritted my teeth and said "No." And found another doc.

30+ years later: Still sick, still no regret over my tubal ligation

So sorry you're dealing with POTS symptoms 😔 I've had ...

2024-12-06T16:59:02Z

In reply to nevent1q…d3cr
_________________________

So sorry you're dealing with POTS symptoms 😔

I've had orthostatic intolerance (NMH, POTS) since 1990. For me it's part of ME/CFS which was triggered by some unknown virus.

Have you seen this recent blog post by The Disabled Ginger?

"Learning to Live Horizontally - Your Guide to All Things POTS"

https://www.disabledginger.com/p/learning-to-live-horizontally-your

Such a great story! 😍 "Fold paper. Insert lens. This $2 ...

2024-11-26T16:35:12Z

Such a great story! 😍

"Fold paper. Insert lens. This $2 microscope changes how kids see the world"

https://www.npr.org/sections/goats-and-soda/2024/11/24/g-s1-35181/microscope-lens-students-foldscope

"Once assembled the Foldscope is the size of a bookmark. It’s small enough to fit in a pocket and can magnify up to 140 times.

Each unit costs around $2 to make. Foldscopes are offered for free to kids in lower income countries; various upgraded models with extras are sold as well, earning money for the charitable endeavor."

#Science #Education #Foldscope #NPR

I just called my own congress rep and left a message asking her ...

2024-11-19T21:59:24Z

I just called my own congress rep and left a message asking her to vote NO on #HR9495

More info here:

https://www.nationofchange.org/2024/11/15/tlaib-aclu-and-advocates-warn-h-r-9495-could-empower-trump-to-silence-nonprofits-and-stifle-dissent/

I urge everyone to call even if your representative voted no previously. The attached image has a suggestion for what to say when you call.

#USPol #USPolitics #NonProfits

"U.S. Rep.-elect Bynum will be Oregon’s first Black member ...

2024-11-14T21:59:49Z

"U.S. Rep.-elect Bynum will be Oregon’s first Black member of Congress after flipping House seat"

https://www.pbs.org/newshour/politics/u-s-rep-elect-bynum-will-be-oregons-first-black-member-of-congress-after-flipping-house-seat

"It’s not lost on me that I am one generation removed from segregation. It’s not lost on me that we’re making history. And I am proud to be the first, but not the last, Black member of Congress in Oregon,” Bynum said at a press conference last Friday.

#Oregon #USPol #USpolitics

Story from OPB: ...

2024-10-28T17:40:51Z

In reply to nevent1q…j73l
_________________________

Story from OPB:

https://www.opb.org/article/2024/10/28/ballot-box-burned-portland-vancouver/

To check on your ballot status:

Oregon = https://sos.oregon.gov/voting/Pages/myvote.aspx?lang=en

Washington = https://voter.votewa.gov/portal2023/login.aspx

#USPol #Election2024 #Ballots #Oregon #Washington

#Autumn #Fall #Trees #Foliage #SilentSunday ...

2024-10-27T22:37:59Z

#Autumn #Fall #Trees #Foliage #SilentSunday

If you're an elections nerd here's a behind the scenes ...

2024-10-20T23:43:47Z

In reply to nevent1q…2r6z
_________________________

If you're an elections nerd here's a behind the scenes look at how vote by mail works in Washington County, Oregon:

https://www.youtube.com/watch?v=lwDyj7WZfV8

#USPol #Election2024 #Oregon #WashingtonCounty #VoteByMail #VoteAtHome

More info on vote by mail rules in different states can be found ...

2024-10-20T23:37:23Z

In reply to nevent1q…naxy
_________________________

More info on vote by mail rules in different states can be found here:

"How vote at home friendly is your state?"

https://voteathome.org/state-profiles/

#USPol #Election2024 #VoteByMail #VoteAtHome

sigh The Trump campaign decided not to put an item in the ...

2024-10-20T23:22:24Z

*sigh*

The Trump campaign decided not to put an item in the Oregon voter's pamphlet, which started a rumor that election officials had *prevented* Trump from being listed there, which caused a bunch of jerks to call and complain 😠

"Oregon elections phone lines closed after a flood of conspiracy calls"

https://www.opb.org/article/2024/10/17/oregon-elections-phone-lines-closed-after-a-flood-of-conspiracy-calls/

"the office received around 400 calls … Many of those calls were abusive, she said, while some were explicitly threatening."

#USPol #Oregon #Election2024

Just FYI, according to this Washington Post article "fewer ...

2024-10-20T22:48:00Z

In reply to nevent1q…sfve
_________________________

Just FYI, according to this Washington Post article "fewer than half of all votes in 2022 were cast in person on Election Day."

"How people cast their vote in each state, and how it’s changing"

gift link = https://wapo.st/3YgsjgC

(click on the link above ⬆️ and not the preview below to avoid the paywall. It does ask for an email, not sure whether it has to be valid)

#USPol #Election2024 #VoteByMail #EarlyVoting #GiftLink #GiftArticle

We voted! 🗳 I'll take our completed ballots to a drop box ...

2024-10-20T22:22:37Z

We voted! 🗳

I'll take our completed ballots to a drop box later today 😁

I always laugh when Obama says to get off the couch and vote because we voted while sitting on the couch! Here in Oregon we've voted at home for so long that I forget how many folks can't vote that way.

#USPol #IVoted #HarrisWalz #VoteBlue #FederateTheVote #Oregon #VoteByMail #VoteAtHome

Quote posting to add hashtags: "Wow. Kamala Harris is really ...

2024-10-15T17:43:59Z

Quote posting to add hashtags:

"Wow. Kamala Harris is really good at this.

Fantastic recovery from Obama's careless phrasing in this interview with Justin Carter from The Shade Room."

https://hachyderm.io/@mekkaokereke/113309611321284023

#USPol #KamalaHarris #HarrisWalz #Election2024

Thanks for the heads up! 😁 Oregon, an all vote by mail state ...

2024-10-15T01:51:08Z

In reply to nevent1q…r7uv
_________________________

Thanks for the heads up! 😁

Oregon, an all vote by mail state (well, I guess it's possible to vote in person, but hardly anyone does!) has not yet started mailing out ballots. They will start mailing them on October 16.

I did get my voters' pamphlet, though!

My voting plan is to fill out my ballot at home and then return it via one of the nearby drop boxes 🗳

#USPol #Elections2024 #Oregon #VoteByMail #VoteAtHome

"Salmon swim freely in the Klamath River for 1st time in a ...

2024-10-08T00:00:36Z

"Salmon swim freely in the Klamath River for 1st time in a century after dams removed"

https://www.oregonlive.com/environment/2024/10/salmon-swim-freely-in-the-klamath-river-for-1st-time-in-a-century-after-dams-removed.html

"For the first time in more than a century, salmon are swimming freely along the Klamath River and its tributaries — a major watershed near the California-Oregon border — just days after the largest dam removal project in U.S. history was completed."

#Oregon #California #PNW #Wildlife #Salmon

Beautiful ❤️

2024-10-03T21:29:52Z

In reply to nevent1q…9twy
_________________________

Beautiful ❤️

Yep! Here's an article from OPB about Measure 117: ...

2024-10-03T18:50:01Z

In reply to nevent1q…w9vq
_________________________

Yep! Here's an article from OPB about Measure 117:

https://www.opb.org/article/2024/10/03/measure-117-ranked-choice-voting-oregon/

Portland, Oregon will be using ranked choice in the upcoming election. Quote:

"Voters have already been using ranked-choice voting in Corvallis and Benton County elections. They will use it for the first time this year in Portland and will begin using it in Multnomah County in 2026."

#USPol #Oregon #PDX #Election2024 #RankedChoice #RankedChoiceVoting

From Alice Wong, Disability Visibility Project: "2024 ...

2024-10-03T17:31:00Z

From Alice Wong, Disability Visibility Project:

"2024 MacArthur Fellows Program"

https://disabilityvisibilityproject.com/2024/10/02/2024-macarthur-fellows-program/

"Hard to believe but I am a 2024 MacArthur Fellow! This has been a year with lots of highs and lows so receiving this was a surprise and it means a lot."

#Disability #DisabilityJustice #Disabled #AntiAbleism #AliceWong

Correction, I think it's international raccoon day, so not ...

2024-10-01T17:54:31Z

In reply to nevent1q…0g9z
_________________________

Correction, I think it's international raccoon day, so not just a USA thing? 😂

https://www.daysoftheyear.com/days/international-raccoon-appreciation-day/

I heard it's also national raccoon day! 🦝 😁

2024-10-01T17:51:11Z

In reply to nevent1q…4uhy
_________________________

I heard it's also national raccoon day! 🦝 😁

"Oregon voters to decide on ballot measure to give every ...

2024-09-23T18:07:23Z

"Oregon voters to decide on ballot measure to give every resident $1,600 that has sparked massive opposition fundraising"

gift link:

https://www.oregonlive.com/politics/2024/09/oregon-voters-to-decide-on-ballot-measure-to-give-every-resident-1600-that-has-sparked-massive-opposition-fundraising.html?gift=1d820dac-dd7f-4d89-a517-609e9320318a

#USPol #ORpol #Oregon #Election2024 #BasicIncome #GiftLink #GiftArticle

"‘Red Alerts’ issued for Wednesday and Thursday to help ...

2024-09-18T23:21:04Z

"‘Red Alerts’ issued for Wednesday and Thursday to help migrating birds in Oregon"

https://www.oregonlive.com/weather/2024/09/red-alerts-issued-for-wednesday-and-thursday-to-help-migrating-birds-in-oregon.html?gift=b8c71a81-0fa5-4c10-8768-9fad9ebc673f

“Lights Out, Oregon” ... asks residents and people managing buildings to turn of unnecessary overnight lights.

“Most birds migrate at night using stars to help guide them,” Coolidge said, “so lights out campaigns help reduce the light pollution that drowns out the stars and helps keep birds safely aloft on their journeys.”

#Birds #Birding #Oregon #PNW #LightsOut #GiftLink #GiftArticle

From The Sick Times: "A brief, oral history of mask blocs: ...

2024-09-12T21:34:59Z

From The Sick Times:

"A brief, oral history of mask blocs: Part 1"

"Mask blocs are grassroots mutual aid groups that distribute high-quality masks, such as N95s, for free in response to public health failures during the ongoing COVID-19 pandemic. Many were created and are led by disabled people, many of whom had little or no prior organizing experience."

https://thesicktimes.org/2024/09/10/a-brief-oral-history-of-mask-blocs-part-1/

#COVID #CovidIsNotOver #LongCovid #PostCovid #PublicHealth #MaskUp

"Tim Walz Is Leading the Way on Long Covid Funding" ...

2024-08-10T04:18:41Z

"Tim Walz Is Leading the Way on Long Covid Funding"

https://www.motherjones.com/politics/2024/08/tim-walz-minnesota-long-covid-funding-harris-vp/

"Now, with Walz a prospective Vice President, Long Covid and related conditions may have a more highly placed advocate than ever before—with a demonstrated record of working to combat this post-infectious disease."

MECFS group (npub1gxp…cjhq) longcovid group (npub10ng…m7ge)

#LongCovid #MEcfs #POTS #Dysautonomia #Research #Minnesota #USA #USPol