2024-09-16T04:22:14Z https://yabu.me Rainbow (plural system) 🏳️‍⚧️ https://yabu.me/npub1cddfhylepkcr2dsxqj7tvrxn6layydaelxlp8grhwst7wu4m4x8qylh2u4 https://files.strangeobject.space/accounts/avatars/111/987/142/127/959/980/original/069e289939e60b80.jpeg https://files.strangeobject.space/accounts/avatars/111/987/142/127/959/980/original/069e289939e60b80.jpeg https://yabu.me/nevent1qqs27kw8pqze59n7qw7j4vylfc2zdg2ahmwtuev3eadwq2987g52n0czyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cuqjwjyz In reply to <a href='/nevent1qqs2zerq05n05x4qe6cd3ct9hjjpsf3gefl80va0xvqae866n6nk44qfhk2xh'>nevent1q…k2xh</a><br/>_________________________<br/><br/>(Fern:) Possibly? All 13 people who responded to my poll under the original post said that Beach Day was &#34;best&#34;, so probably. But yeah, ugh. 2024-09-06T09:27:28Z https://yabu.me/nevent1qqsvlup3sevnqv54wnz57vc356qsrw9qpz05kns0wu6aajkr3gqd0cszyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cudcyv7z In reply to <a href='/nevent1qqs84t60gz4d5e6yx9yxrvxzkqqxwmpvt3k0mw3z9y6zcuhhcr5wg7suv4tnr'>nevent1q…4tnr</a><br/>_________________________<br/><br/>(Fern:) Thank you so much! 2024-09-06T09:26:32Z https://yabu.me/nevent1qqswqdnw0csdprpyfkhs45mred3k888ysvjerjsez9q89hnv5e92e7szyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cus9sqft (Fern:) Can someone help me choose the &#34;best&#34; option here for this poor customer service representative 😭 beach day, right?? Just give me a scale from 1 to 3 or something...<br/> <img src="https://files.strangeobject.space/media_attachments/files/113/087/891/513/431/250/original/76727ce9a25e17c4.jpg"> <br/> 2024-09-06T01:00:17Z https://yabu.me/nevent1qqsp6sat2zp5pt9rvmnfhuz7m59e7adz8c5c6rqt39gpn8gn3ay2mgczyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cu2jwhj6 (Fern:) :ablobcatheart: isn&#39;t an animated emoji, right? I tried checking on my phone, but I don&#39;t know if my &#34;I have animations turned off in 3-4 separate ways&#34; thing is interfering 😅<br/><br/>Edit: thank you, yay! I didn&#39;t want to be replying to people with a bouncy animated cat without knowing 😅<br/><br/>Edit edit: apparently it&#39;s animated for some people but not others? 2024-09-06T00:20:15Z https://yabu.me/nevent1qqswed5w500g6cgm6eks269hv2rkdmqwhf2qq8xva63e70t8afqu42gzyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cuhhx8t8 In reply to <a href='/nevent1qqsxcv9aj2mvt7v0x638zglcq4zhzmhql7hfy3wqlrullhaxee7j4aqkv96ej'>nevent1q…96ej</a><br/>_________________________<br/><br/>(Fern:) I really appreciate the help! 🥺 2024-09-05T15:00:08Z https://yabu.me/nevent1qqs9jwnxdnz2hzmser6mlymyh9wksrzzwe0f8jnukaxvmlsed94kdaqzyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cuxsh7q9 In reply to <a href='/nevent1qqsq5l3xwadvfcr58zd56v6c4jkg6m9rqglhmlhdyk3na4a9q3shzpggv5elk'>nevent1q…5elk</a><br/>_________________________<br/><br/>(Fern:) Oh, thank you so much. I think I have some hang-ups around reporting. 😅 I *have* done it before! 2024-09-05T14:40:47Z https://yabu.me/nevent1qqswddslw4caffndxqyq0pe4j60zwrut59lul5wqxujvw9qaupx79sszyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5curqzt5k Hey um... does anyone know what these are? I feel bad asking if this is a real person, but I also don&#39;t want to get a virus, you know? 😅<br/> <img src="https://files.strangeobject.space/media_attachments/files/113/085/434/411/037/162/original/29c7ffb275d600eb.png"> <br/> 2024-09-05T14:34:49Z https://yabu.me/nevent1qqs2wxdth9pm3r4g5q5g7zwzhdle5ha76k7ufdykv8u3gq8czj5jjggzyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cudp7zaj In reply to <a href='/nevent1qqstykc7ksc0254rgzhrf92zdag59lps4w3rhd49uwv8jkrgw63ckngey9p6v'>nevent1q…9p6v</a><br/>_________________________<br/><br/>(Fern:) Thank you so much. Honestly, it would be something we could accept if we could knit and write fiction (which our mental health is preventing), and if we had the care we need. :( 2024-09-05T14:32:28Z https://yabu.me/nevent1qqs0a0xz0kq5al0gkayat2hqa574r4afgzjzxz3pudkt2jrql5rnneczyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cu0vv36q (Fern:) I&#39;m still like, &#34;that can&#39;t be right&#34; about having *Very Severe* ME/CFS. It feels fake! It especially feels fake when I&#39;m messaging with people online and I&#39;m ending up writing casual essays! <br/><br/>But yeah, the assessment from this study: <a href="https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full">https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full</a> says we are at that level. :&#39;D It specifically says people at this level can write.<br/><br/>(Sorry for the minimal alt text)<br/><br/>#MEcfs #VerySevereME<br/> <img src="https://files.strangeobject.space/media_attachments/files/113/085/288/038/359/429/original/8f7d7965432046b8.png"> <br/> 2024-09-05T13:59:05Z https://yabu.me/nevent1qqsgmmsgx2r025ckyfpaew8ayhcpd5jpgq65f54axulm88quv8vps0gzyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cuemuuw0 (Fern:) If anyone has a recommendation for a HEPA filter on the cheap side that still works... I&#39;m trying to look into getting one since we may be able to start getting home healthcare visits. (If it&#39;s more than $100-150, we&#39;d have to wait until we&#39;re sure we won&#39;t have to pay for a thing coming up in the next couple months.)<br/><br/>I hear square footage is important, so while I don&#39;t have numbers, I can say we&#39;re in a comfortably large (but not huge) one-bedroom apartment. From looking at pictures of apartment listings online, I would estimate 500 square feet for the whole apartment? Sorry, too bedbound to get up and measure it :(<br/><br/>[Edit: probably going with DIY with help from our family! <a href="https://corsirosenthalfoundation.org/instructions/">https://corsirosenthalfoundation.org/instructions/</a> ]<br/><br/>I&#39;m also interested in &#34;explain to a ten year old/someone with brain fog&#34; level explanations of what I might not know that I need to know! I don&#39;t know much at all about HEPA filters.<br/><br/>Boosts are welcome ❤️ <br/><br/>#COVIDIsNotOver #Covid #HEPA 2024-09-04T09:59:05Z https://yabu.me/nevent1qqsrpv2j9ejtg79vzmxjaf6h4h4srn50lj5f6vdmjpd76fk5yqxqhfszyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cueup6dh (Primrose:) I&#39;m so glad for apple pie :D<br/> <img src="https://files.strangeobject.space/media_attachments/files/113/062/704/050/591/523/original/34e185e79f1ece82.jpeg"> <br/> 2024-09-01T14:13:43Z https://yabu.me/nevent1qqsw28sp8a6k6n6e0dnudsuffk6mg9csgj3nxs3ylhd5qunzap6y2mgzyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cueukker In reply to <a href='/nevent1qqs0wr8uznvw88zx072peznrgpkx953e7ynq2vq0rauwr3t2vm08gtqrmrmmd'>nevent1q…rmmd</a><br/>_________________________<br/><br/>(Fern:) Haha, oh no. 😅 2024-08-25T12:43:52Z https://yabu.me/nevent1qqsdnglqx5lt5jrqyzfz8ucjgwywfapz59ztsgt6pu0wfzv9l4d62rczyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cutgy8jy In reply to <a href='/nevent1qqs20d9p2k7knc6ylg7fft9umqcfrvej5s4y75stet35xg30chz4l6ggcqqyc'>nevent1q…qqyc</a><br/>_________________________<br/><br/>(Fern:) Thank you so much. &lt;3 2024-08-25T12:43:38Z https://yabu.me/nevent1qqsy7v7dn3hskwhqclgj8yqgawlk49tpal5h0apchq2zywzyqtd6a9qzyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cu98vhq2 In reply to <a href='/nevent1qqsyrxx66qsaeya50wjk0j0596sez0xxxuzver0cjmpuhgc3ctuecrg3q3m0q'>nevent1q…3m0q</a><br/>_________________________<br/><br/>(Fern:) Yeah, that makes sense! And oh, mood, on forgetting. I think I do okay, but I&#39;ve been known to edit in a CW a few seconds after posting. 😅 2024-08-25T12:24:34Z https://yabu.me/nevent1qqs26tzrgw3c0g4u6cjnz8fxka9xg0wewxc0p5m7adj2ks3eww3y7tczyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cun2n2jj (Fern:) You know how there are terms for “Deaf” and “hard of hearing”? I wish there was a widely accepted distinction like that for being housebound/bedbound. I’m hard of walking, I guess? I hope it’s not rude to make that comparison.<br/><br/>I do get up maybe 3-5 times a day for 3-5 minutes at a time (bathroom, food, etc.), so when I say “I’m bedbound” that’s… not accurate, but I don’t know of a better way to say it. I sometimes say I’m “mostly bedbound”.<br/><br/>I can’t even say “housebound” because two weeks ago my caregiver did help me sit outside for a bit, and then pushed me in my wheelchair on a “walk”. Like, I *do* leave my apartment on occasion. It’s just, it’s quite rare.<br/><br/>I think maybe the problem is that we don’t talk about house/bedbound people and our realities very much. It’s “depressing” or maybe makes abled people think too much about the possibilities of their own future? Becoming disabled doesn’t HAVE to be so terrible, though. We could fix that! 🥺<br/><br/>#housebound #bedbound #MEcfs 2024-08-25T08:57:49Z https://yabu.me/nevent1qqspj34dyt0e9zuks0x72rn097kmz7g8jpuqyus3m86kutwkuqa7nugzyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cuh7z9px (Fern:) Maybe I should put something about not CWing for physical health stuff in our bio? I see a lot of people doing that, but I&#39;m not really comfortable with it unless it&#39;s like, a true vent, which I try to minimize anyway... for me, being like &#34;ugh, guess I&#39;d better get my cane so I don&#39;t have to struggle to get up 🙄&#34; is as normal as a person who lives somewhere with shelves too high for them saying &#34;ugh, I&#39;d better get a stool so I don&#39;t have to climb on the counter. 🙄&#34;<br/><br/>Like, it&#39;s just my daily reality. Some people are disabled! It feels... wrong, to require myself to think, every time I mention how my body naturally moves through space, &#34;is this About Being Disabled(tm) enough that I should add a CW?&#34;<br/><br/>On the other hand, if someone looks at a profile that says &#34;I&#39;m severely disabled&#34; and then is surprised by the person openly being severely disabled, maybe that&#39;s on them. 😅 Maybe I&#39;m overthinking it. 2024-08-24T22:10:51Z https://yabu.me/nevent1qqsx5n2c9t8v5wwnw3le2qcps9mg3e92ev0s245vdpdr6fx6yj8wz9gzyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cuxucj2y So, I know this is a long shot… but we’re looking for Covid-cautious, PTSD-informed caregivers in Salem, Oregon, US.<br/><br/>You’ll need the “Personal Care Attendant” certification through Comagine (if you don’t have it, we can put you in contact with them). We’re open to people with full-time or part-time availability, and we’re flexible re: schedule and holidays. This is a daytime job, not round-the-clock care.<br/><br/>We don’t have a catheter or anything else that would require specialized training - you just need to be able to remember and follow basic instructions, like “if a medical receptionist misgenders us, politely correct them” and “here is the routine for bathing.” We’re told we’re very easy to get along with.<br/><br/>If you’re interested or you’d like more information, our email is rainbowolmstead@gmail.com, and we accept texts (no calls) at 541-515-8592.<br/><br/>We’re going to need a lot of boosts to find someone. Please help, if you’re willing. ❤️<br/><br/>#GetFediHired #MEcfs #PTSD #Trans #SalemOregon 2024-08-20T06:40:41Z https://yabu.me/nevent1qqsxlcuc0yjqcwntnvfccarkc0pz546pkgjfxlredxdtys7rk9duhsgzyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cu0u0w42 (Fern:) Man, I wish Mastodon had functional keyboard shortcuts. (I&#39;m mostly thinking of J and K for moving down or up one post.) You probably wouldn&#39;t think of scrolling as an activity requiring physical exertion, but on a &#34;bad energy day&#34; for us, it&#39;s significant. I&#39;ve had to take several breaks typing this 400-character post because simply typing pushes our arms and fingers to their physical limits.<br/><br/>#MEcfs 2024-08-13T07:16:17Z https://yabu.me/nevent1qqsgw20mtsjscufzymsz758vxxsl0q08al09zvk8f958mkl78mlww4qzyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cuhfczp8 In reply to <a href='/nevent1qqsx38hzptm28zl5yt6dl8zqhpy7464cxt0h96n443lph9r4rkgnkjssywe2d'>nevent1q…we2d</a><br/>_________________________<br/><br/>(Fern:) Oof. 😭 I don&#39;t remember for sure if I&#39;ve ever done this, but I feel like I have. 2024-08-11T20:21:07Z https://yabu.me/nevent1qqszjana7qhhteljm68kl50r6pag8x2namn4pn7s8ythp39puveu80szyrp44xunlyxmqdfkqcztedsv60tl5s3hh8umuyaqwa6p0emjhw5cu5ehfm6 (Fern:) Why do web articles interrupt you to give you a &#34;subscribe to this newsletter!&#34; pop-up while you&#39;re in the middle of reading the article? This has never once worked on me.<br/><br/>I&#39;ve even opened articles where I clicked on them *specifically intending* to subscribe to the site&#39;s newsletter, closed the annoying pop-up while reading because I was busy reading, and then had trouble finding the normal form to subscribe after I was finished. I think, at least one time, I was so annoyed by the pop-up that I decided I was actually NOT going to subscribe to the newsletter like I was originally intending.<br/><br/>Am I weird for this?? Does this actually work on anyone? 2024-08-11T17:46:28Z